Tommy Santora

New Orleans | Team Santora

My name is Tommy Santora, president/founder of the New Orleans Myasthenia Gravis Support Group, and it is my sincere honor to invite you to participate in our 7th Annual New Orleans MG Walk, to be held Saturday, March 3, 2018, at Lafreniere Park in Metairie, beginning at 10 a.m.

I have had MG for 26 years since the age of 12. After 20 years of letting MG beat me and knock me down repeatedly and experiencing every symptom imaginable and taking every medication possibly ever prescribed or recommended for this neuromuscular disease, in 2011, I fought back, and started the New Orleans MG Support Group and also our local Walk. And in the last six years, we have raised more than $200,000 in MG research funds, built tons of awareness across the New Orleans community, and developed a database of more than 100 patients, neurologists, family members, friends and caretakers across Louisiana and Mississippi.

The MG patients I have met through this journey have completely impacted my life and touched my heart. God has helped steer me to be healthy enough to be able to give back to fellow MG patients, and watching the strength and courage of our support group members and MG patients across our country fight daily battles against this disease motivates the hell out of me every day to fight for awareness and for research funds to one day find a cure.

No matter what We Never Give Up. With this unpredictable disease, there will be bad days, but there will also be good days. And you just have to get up every morning and keep fighting the battle, using the support system of your loved ones, to get you through anything.

Raised: $3,275
Goal: $3,000
100 percent raised


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#9  National 
#1  Local

Thank you donors
Regina & Fred Herzog : $100
Brenda Sun : $5
Jeanne Darensbourg : $100
William Musgove : $5
Sheridan Kelly : $20
Emily Kraus : $20
Jessica Reid : $150
Good Luck to you and Whitney!
Susan LaBorde : $50
Brad La Borde : $75
Minnie Flynn : $100
Linda Limbocker : $50
Heather Dominick : $500
We love supporting a great cause. Sincerely, Louisiana Briova Nurses
Louis Divincenti
Frank Borne : $100
Janis Van Meerveld : $200
Happy to support such a good cause, Tommy!
Louis Roussel : $500
Dieter Hugel
Tommy you are amazing!
Meda Hemelt : $100
Tommy, Whitney, Linda and Nancy, sorry I can't make it this year to walk with y'all, but you should have a gorgeous day! I'll be thinking about y'all!
Anne Crochet : $100
Go Team Santora!
Michael Santora : $25
Love ya bro! Wish I could be there!
Nicholas Simoneaux : $25
Julie Vance : $100
Thank you so much for all that you do! Hopefully I can join the walk next year.
Robin Toups : $25
Ronald Murray : $50
Nancy Law : $100
Thanks for all you do, Tommy!
bryan lorenzo : $200
This donation is made under Linda Macke's name....
Team Santora
Tommy Santora - $3275 raised
Alex Herzog - $0 raised
Amiyo Morris - $0 raised
Amy Pierce - $200 raised
Ann Pierce - $125 raised
Blake Pierce - $0 raised
Brittany Tassin - $0 raised
Carl Howell - $10 raised
Cathy Bienvenu - $0 raised
Chris Herzog - $0 raised
Don Adams - $10 raised
Don Theriot - $15 raised
Gavin Pierce - $0 raised
Gina Rivero - $0 raised
Jared Pierce - $0 raised
Kenny DuRapau - $0 raised
Larry Floyd - $40 raised
Leslie Moll - $15 raised
Linda Macke - $0 raised
Lindsay Herzog - $250 raised
Logan Field - $0 raised
Meghan DuRapau - $0 raised
Nancy Pavon - $200 raised
Natalie Juengling - $0 raised
Payton Herzog - $0 raised
Ray Rivero - $200 raised
Raymond Rivero - $0 raised
Ricki Pierce - $145 raised
Ricky Pierce - $0 raised
Robin Wallace - $0 raised
Ryan DiFulco - $50 raised
Sallie dupont - $0 raised
Victoria Murphy - $30 raised
Whitney Santora - $220 raised
William Musgrove - $0 raised
William Musgrove - $0 raised

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