A message from grateful children:
Most people know her by Ramona, close family and friends call her Francia but we have never called her anything other than Mom. For those of you who personally know our Mom you know that she is larger than life even though she stands at a whopping 5 feet. As her children we would tease about her size because as we grew it seemed like she was getting smaller. But, what she lacks in size she makes up for in heart. She was born a fighter and that is what she has always been. At a very young age she lost her father which required her to step up to the plate and help with her brothers and sisters. At 20 she had a child, Darlenis, and immigrated to the United States where she worked long days to help our Dad keep us afloat. Not very long after Caroline came along. Now with two young daughters there was no stopping her on her road to success. Last but not least, Anderson came along, at just 8 months because he could just not wait to join the world. Three kids, a husband, and a whole future ahead she persevered and fast forward to the present time she holds an Associates Degree in Early Childhood Education, she was able to achieve her mother's dream of bringing her children from Dominican Republic even after she passed away, she has made countless friends and has an amazing support system. I tell you this story of success because recently this strong, powerful, amazing woman received a diagnosis she was not expecting, Myasthenia Gravis. After Caroline was born our mother started having problems with her thyroid. She dealt with this problem for so long that she felt she needed a permanent solution. In September of 2016 our mother had her thyroid removed. We thought this would be the solution to the inability to gain weight, the pain, and the overall discomfort. For a little while it felt like our prayers had been answered. But, a year later she still hadn't completely recovered from surgery. She was having a hard time speaking to the point where we couldn't understand her, she couldn't eat solid foods because they would cause her to choke, and she would get bouts where she would have really bad double vision. Still she pushed forward welcoming her second grandchild to the world and being a nanny to 3 small children, Riley, Lozo, and Riney, who adored her just as much as she loved them. She was committed to her family but to these children who had become her babies as well. By the time her time with the children she took care of came to an end as they moved to another state our mother had lost a monumental amount of weight for her already small frame. Her clothes were hanging off of her body, her eyes were having a hard time focusing and after constant trips to the doctor there was still no answer. Originally the diagnosis was a problem with her Para-thyroid in which she was given a medication which required Mom to inject herself daily. This wasn't it and the medication she was taking was making everything much worst. So she was back to the drawing board. Thankfully after many tests she received the correct diagnosis but not one we were expecting. Myasthenia Gravis is an auto-immune disease that has no cure. Our mom is currently on a treatment that is working very well for her but since this isn't a cure it is only helping with the symptoms. Mom is currently gaining weight, is able to eat a little easier and her eyes are giving her less problems. There are still some very difficult days but together we can make a difference. We love our Mom and we just want her to stay happy and healthy to continue living her best life.
COME WALK WITH US OR DONATE!
Thank you for visiting our "MG Walk" personal fundraising page!
We are excited to be supporting the Myasthenia Gravis Foundation of America (MGFA) through the MG Walk. The MGFA is the only national volunteer health agency in the United States dedicated solely to the fight against myasthenia gravis.
MGFA is committed to finding a cure for myasthenia gravis and closely related disorders, improving treatment options, and providing information and support to people with myasthenia gravis through research, education, community programs, and advocacy.
Please register to walk with us OR make a pledge to help us reach our goal!
Together We Can Make A Difference!