Thank you for visiting the PhillyPhanatics "MG Walk" fundraising page!
Our Story is similar to many other families with a loved one who is suffering from myasthenia gravis. At first our family doctors could not quite understand why our nine year old daughter was having trouble walking up stairs, dressing herself, getting out of bed, and even sometimes simply breathing and swallowing. After nine months of "second opinions" the professionals at the DuPont Children's Hospital accurately diagnosed her with MG.
Those doctors, from the DuPont Children's Hospital, in addition to experts from Johns Hopkins and the University of Virginia Medical Center have provided us the support, education, and stability that we have needed to embrace our new normal. Johns Hopkins' Dr. Thomas Crawford, a leading expert in neurology, suggested a thymectomy procedure to help improve Kaity's MG symptoms. So, at age 10, she endured the surgery and recovered like a champ.
We never imagined this would be how our lives would turn out. Everyday we count our blessings for the beautiful, intelligent, funny, sensitive, and caring young woman that stands before us today. She loves volleyball, dogs, art, friends, and family. She is currently in high school and hopes to become a nurse someday. She is the driving force that keeps our family grounded and moving forward.
Thank you to everyone that loves, supports, and appreciates all she goes through. There are many good days, but there are still hard days. This roller coaster ride is not for the weak at heart. Luckily, Kaity is stronger than most.
We are there for her every day. And together we are stronger.
Please register to walk with us OR make a pledge to help me reach my goal!
MGFA is committed to finding a cure for myasthenia gravis and closely related disorders, improving treatment options, and providing information and support to people with myasthenia gravis through research, education, community programs, and advocacy.