I changed the name this year to TOYS R US to honor the end of an era.
As many of you know I have worked for them for just over 20 years. I did this to honor the closing of a company that has been with me in sickness and in health. When I started showing symptoms I had to cut my hours back and even when I was on sick leave they worked with me. I have made many friends over the years and will miss them greatly.
I started with symptoms in the end of 2013. Thought it was a cold that just wouldn't go away. I started to have issues swallowing and my speech was slurred so went to a specialist, he brushed me off, and I pushed on. I started to have weakness in my arms, but I could deal with it.
2014 Things kept getting worse, I was talking like a hearing impaired person, and swallowing was so bad I was living on protein bars and juice. The weakness in my arms got so bad I couldn't lift my 13 lb cat. I thought I might have a pinched nerve so went to a chiropractor, I did have that, but he recommended me to see a neurologist, he had a feeling of what was wrong.
So March of 2015 I found my neurologist, he said it's one of 2 things...let's do a blood test.
Soooo April 5 ,2015 Dr called and said "I have good news and OK news. Good news you don't have ALS", I sighed and was just worried of the next line. "But I do believe you have Myasthenia Gavis it's treatable but not curable". He started me on meds and by the end May I had my first of many crisis.
So after many hospital stays, a thynectomy, and many bouts of plasmapheresis I have got things to a point I'm "stable". Still have to take meds and IVIG but I can deal with it.It has been one Hell of a ride but I hope it now is like a slow train ride instead of the roller coaster it has been.
THANK YOU for visiting our "MG Walk" personal fundraising page!
We are excited to be supporting the Myasthenia Gravis Foundation of America (MGFA) through the MG Walk. The MGFA is the only national volunteer health agency in the United States dedicated solely to the fight against myasthenia gravis.
MGFA is committed to finding a cure for myasthenia gravis and closely related disorders, improving treatment options, and providing information and support to people with myasthenia gravis through research, education, community programs, and advocacy.
Please register to walk with us OR make a pledge to help us reach our goal!
Together We Can Make A Difference!