Thank you for visiting our Team Harper "MG Walk" fundraising page!
Who's Comin' With Us!?!?!?!
This year, the Portland MG Walk is back at the beautiful Summerlake Park in Tigard, OR. on Saturday September 30th @ 10am.
We are super pumped to reunite Team Harper and welcome NEW walkers, as we raise awareness for Mysathenia Gravis and support our local community affected by this rare disease.
The "MG Walk" is the Myasthenia Gravis Foundation of America's (MGFA) national fundraiser. It allows the organization to pursue its goal of finding a cure for MG, while improving treatment options, and providing support for those diagnosed with the disease. Through research, community programs, and advocacy, the MGFA plays an essential role in providing Harper and her fellow MGers with the tools they need to live happy and healthy lives.
This will be Harper's 5th year leading our team. She was diagnosed with Myasthenia Gravis just after her 1st birthday when her eyelids began drooping involuntarily. Ptosis--as it is medically referred to--is a very common symptom for MG patients, but for this rare disease, it is even rarer still to see symptoms in a toddler. Anxious and unaware of the road ahead, when we received Harper's diagnosis we did all the research we could to learn how to keep our baby happy and healthy. Much of that research began with the MGFA, and that is why we so strongly believe participating in the "MG Walk". It is how we give back and it is how we pay it forward.
Harper has been symptom free for almost 5 years now (crazy, miraculous, truly fortunate) but the importance of building awareness, and fighting for a cure, not just treatments, still remains. So please join us on this walk! It is an amazing way to highlight this little know disease and to show support for the diverse community of people it affects.
Harper loves being out with her friends and family, and let's be honest loves all the attention of the big day :)
If you would like to join Harper on Saturday September 30 at Summerlake Park please register to walk with us!
OR make a pledge to one our amazing teammates & help us reach our goal!
We thank you so very much, from the bottoms of our hearts for your support.
Together We Can Make A Difference!
OH! Aaaand we will be printing up NEW Team Harper Tees this year, so sign up sooner than later and email me your sizes (Shannon@acfwest.com). This t-shirt is team specific and not tied to the MG Walk.