Thank you for visiting our "MG Walk" personal fundraising page! "Chuck's Champions" are all rallying around Chuck Bermani. He is my husband but father, stepfather, grandfather, family and friend to his team members. Anyone who knows Chuck, understands how important family is to him and we all want to be his champions.
Chuck was diagnosed with MG the summer of 2016, six weeks before he was scheduled to retire. He had gone to the ER with symptoms he thought were from a stroke. While playing golf he experienced a few short episodes of double vision. Little did we know that he was experiencing other related symptoms as well, trouble chewing and a droopy eye lid. A stroke was ruled out, but while talking to the neurologist we mentioned his other issues and he immediately put two and two together and diagnosed him with MG. The blood test later confirmed this. Luck was on our side as Chuck had been diagnosed before he went into a crisis.
It was that night that I began checking on the internet and found the Myasthenia Gravis Foundation website. Through them we found the CT MG Support Group, and Dr. Nowak. I can not express enough how lucky we were to find them so quickly. Chuck has been in treatment for two years now and is currently not experiencing any symptoms. We understand that while he is feeling like his old self again, his journey is not over.
When Chuck was first diagnosed, and he felt much worse before he got better, we thought our retirement dreams were gone. We received so much positive input from the CT MG Support Group and with the treatment plan from Dr. Nowak we have started traveling and dreaming again.
Without MGFA I am sure that our experience would have been much different. We need your support to ensure that MGFA can continue its commitment to finding a cure for myasthenia gravis and closely related disorders, improving treatment options, and providing information and support to people with myasthenia gravis through research, education, community programs, and advocacy.
Please register to walk with us OR make a pledge to help us reach our goal!
Together We Can Make A Difference!