As a few of you may already know, I was diagnosed with Myasthenia Gravis in October 2016.
Myasthenia Gravis (MG) is a neuromuscular, autoimmune disease that affects neuromuscular transmission of the skeletal (voluntary) muscles, which leads to generalized weakness of the upper and lower extremities, bulbar, ocular and respiratory muscles or localized weakness identified by increasing fatigability, commonly found in repetitive movement. It is classified as the most prevalent disorder of the neuromuscular junction, with an annual incidence of 14-20 patients per 100,000 with an estimated 30,000 to 65,000 cases in the United States alone. As awareness and education continues to grow, the population of diagnosed patients increases. It is the widely held belief that Myasthenia Gravis is under diagnosed and may have a slightly higher rate of occurrence than currently known. The usual cause is an acquired immunological abnormality, but some cases result from genetic abnormalities at the neuromuscular junction. Myasthenia Gravis is most commonly correlated with AChR antibodies that come against acetylcholine receptors (AChR) in the post-synaptic motor end plate. The presentation of Myasthenia Gravis generally begins with ocular weakness that results in ptosis (drooping of the eyelid) and diplopia (double vision). Not all who present with ocular weakness will move on to generalized weakness. The incidence rate of progression to generalized MG is greater than 85%. Generalized weakness can be a slow progression or have rapid onset and is seen with difficulty with walking, talking, speaking, breathing, swallowing, exercising, maintaining neck flexion, falling, slurred speech, a nasal or raspy voice.
This disease is something that I will have to deal with long-term but I will not let it stop me. Here is to hoping they find answers and better treatment options for Myasthenia Gravis.
Sunday, March 11, 2018
Tradewinds Park, Coconut Creek, FL
Check-In begins at 9:00 AM; Walk Ceremony begins at 10:00 AM
ANY BIT HELPS, WHETHER IT BE WALKING OR DONATING. I am highly appreciative of anything and most know I am always up for supporting a great cause.
-Team Bee Amazing
Please register to walk with us OR make a pledge to help us reach our goal!
Together We Can Make A Difference!