Thank you for visiting my "MG Walk" personal fundraising page!
Hi family and friends,
This fundraiser time I am shaking things up with something different. Everyone knows how much my family and I support cancer fundraisers due to family and friends being diagnosed with it. This time I am doing the MG Walk to raise funds for Myasthenia Gravis (MG) because I was diagnosed in December.
The walk is Saturday, September 30, 2017
Middle Branch Park, Baltimore, MD
Check-In begins at 9:00 AM; Walk Ceremony begins at 10:00 AM
As quick rundown, late summer of 2015 I started seeing double on and off and got glasses. By May of 2016, I needed a new and stronger prescription because my right eye muscle was weak. Even after 2 months with the glasses, they still were not helping with the double vision. As the summer progressed, I began to notice that my speech was slurring, chewing, and a little bit of swallowing was an issue. By mid-November, I noticed that the same right eye always looked swollen (drooping), then I was unable to keep my both eye lids open in evening, and I was not able to smile, rub my lips together, or drink from a straw. I went to my primary before Thanksgiving for a neurology referral, and in December the neurologist gave me the official diagnosis of MG. This is why I always looked tired, or under the influence. For my family, because I know some of you will go in a bit of a panic, I CAN LIVE A LONG NORMAL LIFE! To put this in perspective, it is like being diagnosed with diabetes, I just have a new normal and it is managed with treatment.
Speaking of treatment, I have been taking medication which has its pros and cons. Part of my treatment is surgery to take out my Thymus.
I have had TREMENDOUS support from my parents, Kevin, Mark , my bosses, and friends. Since this is rare, everyone did their research and asked me tons of questions, which I do not mind answering. Again, this is rare and the reason I decided to do this.
Also, as a PSA, read this:
I am excited to be supporting the Myasthenia Gravis Foundation of America (MGFA) through the MG Walk. The MGFA is the only national volunteer health agency in the United States dedicated solely to the fight against myasthenia gravis.
MGFA is committed to finding a cure for myasthenia gravis and closely related disorders, improving treatment options, and providing information and support to people with myasthenia gravis through research, education, community programs, and advocacy.