Thank you for visiting my "MG Walk" personal fundraising page!
As you may already know, I was diagnosed with MG last summer when, after awaking with severe double vision, I continued to become weaker until my airway collapsed a few days later. Luckily, I was already in the hospital and was able to get treatment right away. But because MG is so rare, and I have the rarest version of it, even the doctors weren't exactly sure what to do to help me at first.
My journey included MG crisis, cholinergic crisis, intubation, 3 months of vent weaning, LOTS of setbacks, eventual discharge to inpatient rehab, home briefly, hip fracture and partial replacement and more rehab both at home and in 7 different facilities. Despite all this, I am one of the lucky ones: I have sisters who gave up their normal lives to get me through this, a large family who also gave in any way that they could, friends near and far who supported me through cards, visits, emails & social media, and many others who are somehow connected to me by one of the above. Plus, the medications thus far have kept me stable, and I have a definitive diagnosis - many others on this journey have not yet been as fortunate. Because of my good fortune, I want to give back, and I hope that you will join me.
I am excited to be supporting the Myasthenia Gravis Foundation of America (MGFA) through the MG Walk. The MGFA is the only national volunteer health agency in the United States dedicated solely to the fight against myasthenia gravis.
MGFA is committed to finding a cure for myasthenia gravis and closely related disorders, improving treatment options, and providing information and support to people with myasthenia gravis through research, education, community programs, and advocacy.
Please join my team and help me reach my goal - Together We Can Make A Difference!