Thank you for visiting my "MG Walk" personal fundraising page!
I am a Myasthenia patient's voice in raising awareness for the rare disease of Myasthenia Gravis (MG). Myasthenia is a neuromuscular autoimmune disease where there is fluctuation of muscle weakness and fatigue of the voluntary muscles, which people often take for granite, and it affects all ages, sex, and race.
I am excited to be supporting the Myasthenia Gravis Foundation of America (MGFA).The MGFA is the only national volunteer health agency in the United States dedicated solely to the fight against MG. MGFA is committed to finding a cure for Myasthenia Gravis and closely related disorders, improving treatment options, and providing information and support to people with Myasthenia Gravis through research, education, community programs, and advocacy.
I thought that I had my life all planned out, WRONG!Life can change in an instant from what we had planned or even dreamed about. Life can change drastically with the rare autoimmune disease, MG. I have learned that I AM MG STRONG, because when I am weak, I am strengthened by keeping my faith, perseverance and positive attitude through the adversities.
I was diagnosed with Myasthenia Gravis in 2006, but I did not begin my journey as an advocate for MG until the fall of 2014. It was at a time when my body was weak, but my mind was very strong. I do not have the choice of my strength, but I do have the choice to not dwell on the past, worry about the future, and live each moment to the fullest, one day at a time. I decided to step out of my comfort zone and become an advocate for MG to raise awareness, participations and donations for the MGFA in the regions surrounding Southern Illinois, where I am a resident.
Yes, I walk the shoes of MG, but it is not the end of the world. Through my persevering personality I stepped out of my comfort zone and decided to make a difference by becoming an advocate for MG in my region in 2014, where there had not been any awareness, and I began the Southern IL Walk. Now as an Ambassador I take bringing awareness anywhere my journey leads me, even on vacation.It is because I am MG strong that I took my awareness with me to Hawaii on vacation and began the first MG walk in the state of Hawaii in February 2017.
I have learned to stand firm as my own advocate, persevere, and most of all continue the journey as an Ambassador for MG wherever my journey may lead me. I continue to stay MG Strong because as an Ambassador it allows me to share awareness with others, which do not know about MG, and gives me the opportunity to let other MG patients know that they are not alone in the world with the rare neuromuscular disease.
As a “Patient’s Voice” representing Myasthenia I now take my advocacy for MG wherever I go, which this year my raising awareness began this year in the state of Hawaii, which had not had awareness or a Myasthenia Walk. Through the help of my Kauai friend and others we began the awareness journey to the state of Hawaii, in Feb. 2017. My Ambassador journey continued on in carrying forward with the 2018 Southern IL Walk. My goal for our region this year is to have 5 states participates, (Southern IL, Western KY, MO, Southern Indiana, and Northwest TN).
Anyone that lives or is visiting the state and want to help us bring awareness join us on
the “Rocknmc Team", which is through the MGFA.
Date: Saturday, October 13, 2018
Place: Washington Park in Metropolis, IL
Time: Registration is at 9am and walk at 10am
Please register to walk with me OR make a pledge to help me reach my goal!
Together We Can Make A Difference!