Paula McGinnis

Southern Illinois | Rocknmc

Thank you for visiting my "MG Walk" personal fundraising page!

 I am a Myasthenia patient's voice in raising awareness for the rare disease of Myasthenia Gravis (MG). Myasthenia is a neuromuscular autoimmune disease where there is fluctuation of muscle weakness and fatigue of the voluntary muscles, which people often take for granite, and it affects all ages, sex, and race.

I am excited to be supporting the Myasthenia Gravis Foundation of America (MGFA).The MGFA is the only national volunteer health agency in the United States dedicated solely to the fight against MG. MGFA is committed to finding a cure for Myasthenia Gravis and closely related disorders, improving treatment options, and providing information and support to people with Myasthenia Gravis through research, education, community programs, and advocacy.

As I viewed the clouds outside of the airplane window, after attending the 2017 National Myasthenia Gravis of America Conference, I had “I AM MG STRONG,” come into my thoughts. My thoughts were filled with the positive, not negative, impact that MG has had on my life and what has actually made me MG Strong.The primary conclusion is all about awareness.

I thought that I had my life all planned out, WRONG!Life can change in an instant from what we had planned or even dreamed about. Life can change drastically with the rare autoimmune disease, Myasthenia Gravis. I have learned that I AM MG STRONG, because when I am weak, I am strengthened by keeping my faith, perseverance and positive attitude through the adversities.

I was a happy, energetic mid-fifties year old, and I ran five to seven miles seven days a week, eating healthy including drinking plenty of water. I would often run extra or mow the lawn in the evening to destress from working in the medical field.I was a full time neurology RN, wife, mother, grandmother, daughter caregiver of elderly parents.

I was diagnosed with Myasthenia Gravis in 2006, but I did not begin my journey as an advocate for MG until the fall of 2014. It was at a time when my body was weak, but my mind was very strong. I do not have the choice of my strength, but I do have the choice to not dwell on the past, worry about the future, and live each moment to the fullest, one day at a time. I decided to step out of my comfort zone and become an advocate for MG to raise awareness, participations and donations for the MGFA in the regions surrounding Southern Illinois, where I am a resident.

Yes, I walk the shoes of Myasthenia Gravis, but it is not the end of the world. Through my persevering personality I stepped out of my comfort zone and decided to make a difference by becoming an advocate for MG in my region in 2014, where there had not been any awareness, and I began the Southern IL Walk. Now as an Ambassador I take bringing awareness anywhere my journey leads me, even on vacation.It is because I am MG strong that I took my awareness with me to Hawaii on vacation and began the first MG walk in the state of Hawaii in February 2017.

I am a person about the principle of things, and I never did like change, but the change made by having MG has made my mind MG Strong, even when my body is weak. I have learned to stand firm as my own advocate, persevere, and most of all continue the journey as an Ambassador for Myasthenia Gravis wherever my journey may lead me.

I am MG Strong because I have a very supportive family, friends, acquaintances, and a very supportive husband.I am thankful every day that my husband is my best friend, and I consider him my MG caregiver hero, if I need one. If anyone, in my life, truly understands MG and walks in the shoes with me it is him.As I journey through life with MG I have realized the importance of, as the expression goes, “Take time to smell the roses.”

I continue to stay MG Strong because as an Ambassador it allows me to share awareness with others, which do not know about MG, and gives me the opportunity to let other MG patients know that they are not alone in the world with the rare neuromuscular disease.

 

As a “Patient’s Voice” representing Myasthenia I now take my advocacy for MG wherever I go, which this year my raising awareness began this year in the state of Hawaii, which had not had awareness or a Myasthenia Walk.  Through the help of my Kauai friend and others we began the awareness journey to the state of Hawaii, which was on Feb. 18, 2017. My Ambassador journey continued on in carrying forward with the 2017 Southern IL Walk.  My goal for our region this year is to have 5 states participates, (Southern IL, Western KY, MO, Southern Indiana, and Northwest TN).

Anyone that lives or is visiting the state and want to help us bring awareness join us on

the  “Rocknmc Team",  which is through the MGFA.


Date: Saturday, October 14, 2017

Place:  Washington Park in Metropolis, IL

Time: Registration is at 9am and walk at 10am


Please register to walk with me OR make a pledge to help me reach my goal!

Together We Can Make A Difference!



Raised: $2,940
Goal: $1,000
100 percent raised

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Rank:  
#20  National 
#1  Local

Thank you donors
Paula McGinnis : $300
Donation and proceeds from fundraiser
John K Foster : $250
Carissa & Jack Kline : $210
Benton Community Church : $200
Jacqueline & John Will : $150
Paula McGinnis : $105
Fund Raiser $15 Kayden Kline raised $90
Linda Slone : $100
Clarence Anderson : $100
David & Lillie Martin : $100
Deborah Helm : $100
Gerald Searles : $100
Massac Memorial Hospital : $100
Merle Metcalf : $100
Paula .. maybe next year. Keep up the good work!
Midwest Terminal : $100
Paula McGinnis : $100
Donated for Gary McGinnis
Gerald Searles : $100
Dana Tockstein : $75
Paula McGinnis : $70
Fundraiser
Judy's Hawkins : $50
Citi National Bank : $50
Paula McGinnis : $50
Gift given to me (Paula) from Myron and Heather McGinnis $50
Debra Medley : $50
Audrey Huffmaster
Keep fighting against MG!
Paula McGinnis : $30
Richard and Marge Reynolds $20 Fundraiser $10
Paula McGinnis : $30
Donations from: Janet Hanks $10 and Peggy Johnson $20
Tommy & Devon Wilke : $25
Mike & Marla Helton : $25
Jane Sheehan : $25
Joyce Wilford : $25
Philip & Michelle McGinnis : $25
Deanna Bremer : $25
Dianna Grimes (GIA) : $25
Betty Riley : $25
Anonymous
Larry Dudley : $25
Paula McGinnis : $20
Karen Funkhouser $20 donation
Kelly's Mane Image LLC : $10
Rocknmc
Paula McGinnis - $2940 raised
Addalyn Kline - $0 raised
bentley kline - $0 raised
Carisa Kline - $0 raised
Carter Mcginnis - $0 raised
Clarence Anderson - $0 raised
colton tockstein - $0 raised
Cynthia Rabina-Houck - $200 raised
dale hanks - $0 raised
dana tockstein - $0 raised
Deanna Bremer - $0 raised
Debra Medley - $0 raised
Debra Helm - $0 raised
Diane Grimes - $0 raised
Gary McGinnis - $0 raised
Heather Mcginnis - $0 raised
heather stout - $0 raised
Hyalea Mcginnis - $0 raised
Jack Kline - $0 raised
jackie will - $0 raised
janet hanks - $0 raised
Jessica Kline - $0 raised
joyce wilford - $0 raised
Kaleb Kline - $0 raised
Kayden Kline - $0 raised
kendall shook - $0 raised
Linda Slone - $0 raised
Mark Thompson - $100 raised
Maura Corley - $780 raised
Myron Mcginnis - $0 raised
Peggy Johnson - $0 raised
Piper Mcginnis - $0 raised
Rebecca Mcginnis - $0 raised
Ryan Kline - $0 raised

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