Thank you for visiting my "MG Walk" personal fundraising page!
A little about me: After a few months of knowing something wasn't right with my body, many blood tests, EMG's and doctors’ visits, I was diagnosed with Myasthenia Gravis (MG) on August 31st. MG Is a neuromuscular auto immune disease. MG is everything I am not. MG causes fatigue/weakness in all my voluntary muscles, including my diaphragm, which helps me breathe. Earlier this year, when I realized something wasn’t right, I started using a cane, sporadically, to support myself. There are good moments and bad moments and the cane helps me stay on my feet.
Since being diagnosed, I now take Mestinon, a drug specifically for MG. Each pill lasts in the system approximately 3-6 hours, so I am popping pills all day long just to try and sustain my every day duties of school, work, wife, and mom. As it wears off, I literally become like a rag doll. I thank God for this little miracle pill as it keeps me somewhat living a 'new' normal life. There are other more invasive treatments available; however, my neurologist has started me with the least invasive one at this time. The other treatments are also only temporary in nature.
While there are treatments for MG, there is no cure....yet! Please help support awareness so that maybe one day there will be a cure.
I am excited to be supporting the Myasthenia Gravis Foundation of America (MGFA) through the MG Walk. The MGFA is the only national volunteer health agency in the United States dedicated solely to the fight against myasthenia gravis.
MGFA is committed to finding a cure for myasthenia gravis and closely related disorders, improving treatment options, and providing information and support to people with myasthenia gravis through research, education, community programs, and advocacy.
Please register to walk with me OR make a pledge to help me reach my goal!
Together We Can Make A Difference!
Thank you, and God Bless,