As many of you know, I was diagnosed with Myasthenia Gravis in 2000. I had a major crisis that year so much so that my neurologist called me her "little miracle" because I managed to come out of it alive and most of the time live a somewhat normal life with the aid of various medicines which stave off the effects of MG without actually curing it. One of my drugs, prednisone, has depleted the calcium in my bones giving me osteoporosis, keeps my weight up, and gave me drug induced cataracts but without prednisone, I would not be functioning. Prior to Katrina, I was in a medically induced remission without any signs of MG. Since then and my return to New Orleans having lived in a formaldehyde-ridden trailer (can't make a direct connection) for a year and a half, my MG has become active going up and down in degrees, but never in complete remission. Just yesterday my two year old grandson wanted me to be blow up one of his punching balloons. I had the needed air in my lungs, but I couldn't completely close my mouth around the stem of the balloon to blow. I had to hold my lips together on both sides for me to accomplish this task.
So why am I am now writing about my MG travails because I am fortunate enough to able to do an MG Walk in Austin in November and are asking for your donations to help cure this disease which at many times goes unnoticed by people - blowing balloons, having to sleep more than usual, not being able to talk properly, having to sit down because you can't take another step, not being able to go out to eat because you can't chew or swallow.
I am excited to be supporting the Myasthenia Gravis Foundation of America (MGFA) through the MG Walk. The MGFA is the only national volunteer health agency in the United States dedicated solely to the fight against myasthenia gravis.
MGFA is committed to finding a cure for myasthenia gravis and closely related disorders, improving treatment options, and providing information and support to people with myasthenia gravis through research, education, community programs, and advocacy.
Please register to walk with me OR make a pledge to help me reach my goal!
Together We Can Make A Difference!