I was diagnosed with Myasthenia Gravis about 14 years ago. It went into remission as quickly as I was diagnosed. Then three years later, 5 months after my first daughter was born, I started to relapse. Within 10 months of the onset of my MG symptoms for this relapse, I was completely disabled by the disease this time. I could barely walk, talk, chew, swallow, lift my arms, or smile. Even blinking was a massive effort. Over the next 10+ years of my life I tried every medication, treatment and IV/Plasma therapy. They would all work initially then fail. I even under went chemotherapy 2 years ago in one last attempt to tame this disease which has limited me to about 20% of my former self. It did not work and my disease status was changed to treatment resistant. I still undergo IVIG every two weeks to maintain my MG. IVIG should last for 6 weeks but I can not go that long between treatments without a significant increase in my symptoms. It has been really hard these last 10 years but not all bad. My husband and I were lucky enough to welcome a second daughter into the world who along with her sister keep me pushing forward. My husband has stood by me through it all and I am lucky enough to love my life in spite of hating this disease. I focus on the things I can do and try not to dwell on what should have been. I rest often and do things that make me feel happy.
The reason I walk for MG is that without further research into new medications and treatments, this is the best I can hope for. I refuse to accept that. I walk for MG to raise money for research, spread awareness, and create a community I can count on for support during the tough times. Please help support this amazing cause. A donation of as little as $5 will go a long way.
Thank you to all my family and friends who have supported me over the years. You really are the best and I couldn't do this without you!
Thank you for visiting my "MG Walk" personal fundraising page!
I am excited to be supporting the Myasthenia Gravis Foundation of America (MGFA) through the MG Walk. The MGFA is the only national volunteer health agency in the United States dedicated solely to the fight against myasthenia gravis.
MGFA is committed to finding a cure for myasthenia gravis and closely related disorders, improving treatment options, and providing information and support to people with myasthenia gravis through research, education, community programs, and advocacy.
Please register to walk with me OR make a pledge to help me reach my goal!
Together We Can Make A Difference!