Thank you for visiting my "MG Walk" personal fundraising page!
I am extremely thankful you have come this far and hope you can read just a bit farther. I will try to keep it short, as I could write until the end of time about my life and MG, but more importantly, why raising awareness and fundraising is so important for MG.
Myasthenia Gravis is a autoimmune, neuro-muscular disorder(say what!) that causes varying levels of weakness with any voluntary muscle. Like all autoimmune disorders, it occurs when the body/immune system makes a mistake and fails to recognize the difference between yourself and foreign invaders(bacteria, viruses, etc.) With MG, the immune system makes auto antibodies that target the neuromuscular junction. The result is a reduced signal to muscles and in turn, reduced strength.
This result can be debilitating at times for some or more often for others. MG effects walking, breathing, chewing, swallowing, talking, vision, use of arms, etc. There is treatment available, but it starts with steroids, continues with repetitive infusions and currently comes with a laundry list of side effects. I am fortunate for these medications, as they allow me to function and live a productive life.
There are several ongoing research studies and treatments that are yielding inspiring and possibly life changing results . The MGFA is ultimately committed to finding a cure for myasthenia gravis and closely related disorders, improving treatment options, and providing information and support to people with myasthenia gravis through research, education, community programs, and advocacy.
Please join my team AND/OR make a pledge to get us that much closer to the ultimate mission, a world without MG!
With thanks and appreciation,
Mike Ursic :-)