Thank you for visiting my "MG Walk" personal fundraising page!
I am excited that I am able to walk and raise money in support of mission of the Myasthenia Gravis Foundation of America. To me, and many others living with Myasthenia Gravis, our families and friends, the MGFA continues to be a source of much needed information, support and most importantly hope.
Lots can be done to alleviate the suffering of patients with Myasthenia Gravis. Because of the rarity of this disease, there is a lack of awareness and funding for research and patient support systems. It is therefore up to us, to come together in support of this organization that really is the backbone of the MG community.
Some of the issues the MGFA attempts to address are
Healthcare provider education - often times healthcare providers have net never had to deal with MG patients, and inadvertently make uninformed medical decisions on behalf of the patient.
Establishing patient support systems. Patients are often isolated without support networks or other patient's to More outreach, patient and care-giver education is needed.
Employers have never heard of MG and have no idea how to accommodate employees with MG. Increased awareness never hurt anyone.
Please register to walk with me OR make a pledge to help me reach my goal!
Together We Can Make A Difference!