Thank you for visiting my "MG Walk" personal fundraising page! (Personal Story below)
I am excited to be supporting the Myasthenia Gravis Foundation of America (MGFA) through the MG Walk. The MGFA is the only national volunteer health agency in the United States dedicated solely to the fight against myasthenia gravis.
MGFA is committed to finding a cure for myasthenia gravis and closely related disorders, improving treatment options, and providing information and support to people with myasthenia gravis through research, education, community programs, and advocacy.
Please register to walk with me OR make a pledge to help me reach my goal, as well as take the time to read my story....
My journey with MG started probably late 2012 early 2013. First thing I noticed was that my muscles in my stomach and my face weren't "working". They would twitch, I couldn't smile, talk straight; If I looked at something for too long or lifted my eyes they would slowly begin to shut. I didn't know what was going on and that wasn't even the worst of it quite yet. As time went on, I would notice more and more little things happening and getting worse. My eyes would barely open, my arms and entire body got weaker to the point where lifting a small glass was near impossible.
When I would lie flat my throat would close and I literally couldn't breathe. At this point my denial of something being wrong, was at its peak. I blamed every little thing happening on my newly diagnosed Hypothyroid issue or my daily commute of 140miles each day (how I survived that for 6 months God only knows).
At this point I still made the decision to move 70miles away from my nearest family member and work full time. Trying to be a big girl and do things on my own. Month after month was going by and things were just getting WORSE. I was seriously the most scared I've ever been in my life. I didn't know how to explain what was happening to my body. I couldn't stand without being tired, I could barely walk up my flight of stairs to get to my apartment, I couldn't chew or eat anything that wasn't ice cream or things alike... God how the list goes on. The people around me who I would talk to about it were finally getting scared to the point where they kept telling me to go to the doctors. But, I kept playing it off like I was ok and it wasn't anything serious. It would go away and then I'd be ok...
This was my mantra in my head "I'm fine. My thyroid pills will kick in. Everything will be normal soon" Everyday I would tell myself this to the point of convincing myself. Everyday something would happen and I would be scared all over again.
My BREAKING point and "Oh S***" moment.. Walking to my apartment with my new cat, only making it up 2 stairs before I was out of breathe and had to sit down to try and breathe. Then when I tried to stand up to make it the rest of the way I couldn't get up. I had absolutely NO strength what so ever in my legs to get up, None in my arms to hold onto my cat, and barely enough in my fingers to hold her collar. I was so scared ! I left my phone in my car and there was no one around. I literally sat on my steps scared and not knowing what to do. After a while I mustered up all I could and crawled up the stairs crying, holding onto my cat with whatever will I had in me, I made it to my door and was left stuck on my apartment floor even longer. This was when I finally realized I can't fight this anymore. Something was seriously wrong.
Luckily, I was able to get a quick appt with a doctor who wasn't my usual physician, but I will forever be grateful for her ! Even though she originally thought I was a hypochondriac, with my long list of symptoms and she though i just wanted drugs or something lol But once she confirmed I wasn't a hypocondriac with my original doctor, she referred me to a neurologist who scheduled me as soon as they could. I went into that appointment not knowing what to expect and that is another one I will never forget. It was the most emotional visits I've ever had.. He asked to to do the most simplest things. Look at my finger here then he would move it and my eyes would close. He asked me to lift my legs and hold it. It lasted less then half a second and I couldn't do it. Told me to push my head against his hand, my neck got weak and I couldn't breathe. All I could do was cry because I felt so helpless and I could do nothing. ! He held me and told me it was okay and to try and breathe.
He told me that he and the doctor and I had seen with my list of symptoms thought I had a something called Myasthenia Gravis. He told me not to google it or research it. If my family decides to that they don't tell me anything about it until I take the test to confirm it. (Longest 2 weeks of my life) but it did confirm I had Myasthenia Gravis disease <---- to me the scariest word in the English dictionary other than cancer. It was a relief to finally have an answer but at the same time totally turned my life upside down.
Since my diagnosis I have come a VERY long way. I've had a thymectomy which I believe is the reason, Along with my amazing neurologist Dr. Stephen Knox, for me being 100% medication FREE and doing beyond well currently. I have finally been able to go back to work full time. Move out on my own again. And am beginning to workout and rebuild all the muscle I have lost over the past couple years. !
After all the depression & adjustments I have had to make after this diagnosis I am finally at a point where I am ok with this disease. My life is different yes but it has made me a stronger and more caring individual & has brought something so important to my life that I feel I need to bring awareness to and fight for. I've met so many people along this way with MG- Maria being one of them- and I love that is walk is here to bring us all together to fight for a cure ! So Please find it in your heart to spread the word about MG and if you can make a donation. Every little bit does count. And if you would even like to join our team and walk with us you are more than welcome. Sometimes the emotional support is the most important to anyone fighting a hard battle.
**I know this was long. If you made it to the end thank you so much for taking the time to ready my story ;)**
Remember, Together We Can Make A Difference!