JOAN MCCONNELL

Arizona | JOAN'S JAYWALKERS

Thank you for visiting my "MG Walk" personal fundraising page! Here is a little info regarding my experience with MG...

I was diagnosed in 2013 with Double Seronegative Myasthenia Gravis. Since then, my life has been interesting, to say the least. I have spent every day trying to live as normal a life as possible while coping with this disease. I had never even heard of Myasthenia Gravis until I got sick. My worst day was going into the hospital while experiencing double vision, slurred speech and high blood pressure and not knowing what was wrong with me. Doctors running around, assuming I had a stroke, and me trying to tell them that they were wrong. With my doctor’s advice, I got connected with Mayo Clinic. It took a few months and a lot of testing to diagnose my condition. My neurologist put me on a protocol of Prednisone and Cellcept, with some results, but my slurred speech continued. In December of 2015,  I had my first Rituxan infusion and the second in January 2016. I was due to have my third last year, though sadly, it was denied by my insurance company. The treatments are $26,000 per infusion, and like most of you, that is not affordable. I believe that everything happens for a reason and maybe I was meant to raise awareness by experiencing MG firsthand. As most of you know, MG is a rare disease and does not get the media attention it deserves. My goals are to help raise awareness and donations so that our treatments will be more affordable and our insurance companies will be less hesitant to cover them.

Wanting to know more about this disease, I got as much information as I could and got educated. I truly believe that knowledge is power. I also joined a few support groups and got in contact with people who were going to guide me through this one way or another. With the grace of God and my family and friends, I have been able to live a fairly normal life and keep my full time job. I am happy to report that I am currently in remission, though the addition of a pacemaker makes it a challenge.

I am excited to be supporting the Myasthenia Gravis Foundation of America (MGFA) through the MG Walk. The MGFA is the only national volunteer health agency in the United States dedicated solely to the fight against myasthenia gravis.

MGFA is committed to finding a cure for myasthenia gravis and closely related disorders, improving treatment options, and providing information and support to people with myasthenia gravis through research, education, community programs, and advocacy.

Please register to walk with me OR make a pledge to help me reach my goal!

Together We Can Make A Difference!



Raised: $2,415
Goal: $2,000
100 percent raised

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Rank:  
#27  National 
#1  Local

Thank you donors
Anonymous
Sun Lakes Fire Local 3560 : $500
Jeffrey Stermer : $100
Joan McConnel : $100
SHARI ROBBINS : $90
Unfortunately, I will not be making the walk in person this year. But, Benjie and I will be there with you in spirit!
Stephanie Halpin : $75
For my fierce sister!
Brian Price : $50
Have fun and may they quickly find a cure!
Susan Gullett : $50
Diana Fusco : $50
Thinking of you during your walk good luck
Jean Thompson : $50
Todd & Jaclyn Glover : $50
Hope the weather is great for this event and they can find a cure soon. Good Luck to ALL your Jaywalkers !
Janice fager : $50
Sorry I can't join you in the walk but hoping this donation will help. Good luck Jaywalkers!
Catherine Somers
JOAN MCCONNELL : $50
Adrienne Commins
Good luck this year- wish I could be there with you. Best wishes- Love, Adrienne
Colleen Tucker : $25
Robert & Barbara Edison : $25
Charyl Garman : $25
Marge Pawloski : $25
We will be there to walk on Sunday - John & Marge Pawloski
Joan McConnell : $20
JOAN'S JAYWALKERS
JOAN MCCONNELL - $2415 raised
ALEX MCCONNELL - $0 raised
Barbara Murkle - $20 raised
Chickara Poole - $0 raised
Connie Olmos - $50 raised
ED MCCONNELL - $0 raised
Jean Thompson - $0 raised
Jean Dorney - $85 raised
John Dorney - $0 raised
Karen Loomis - $100 raised
Lori Mordovanec - $50 raised
Mark poole - $0 raised
Mark Poole - $0 raised
Megani Poole - $0 raised
Micah Kidd - $0 raised
Rachel Richter - $0 raised
SEAN MCCONNELL - $0 raised
Taiyo Poole - $0 raised

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