Thank you for visiting my "MG Walk" personal fundraising page! Myasthenia Gravis is a chronic autoimmune neuromuscular disorder in which antibodies attack and destroy neuromuscular connections, causing muscle weakness. Those with MG experience weakness of the voluntary muscle groups, affecting muscles that control eye movement, chewing, swallowing, coughing, facial expressions and breathing as well as the use of extremities. These symptoms are unpredictable and can be potentially life threatening. MG affects tens of thousands of Americans of every race, gender, and age. While there are treatments, there is currently no cure for MG.Back in 2013 my wife wasn't feeling well. We were constantly going to the doctors trying to find out was wrong. She was always tired and had a loss of energy. She kept herself very busy, drove school bus , sold avon, drove the bus for our local boys & girls club, made homemade chocolates. Raised our 2 daughters.We loved to go for walks and be outdoors. February 2014 while driving her bus with our youngest daughter she didn't feel right and pulled over. Our daughter called 911 and they took her off the bus and by ambulance and transported her to the hospital. She spent 2 months in the ICU. After that rehab, because she is on a ventilator. She is still on a ventilator in a long term care facility. She was unable to attend her daughter's wedding last year because she was in the ICU. She does not get to spend time with our 19 month old grandson on a daily basis and be a part of his life . So now we are on our second year . My wife is trying to recover from a collapsed lung. She is still fighting to get off the ventilator and to come home and be with her family and not in a facility. After almost 3 years Sheila has finally come home to her family. There are so many different treatments but they all don't work for everyone . We know everyday is a blessing and a struggle. This disease has turned our family upside down. When i talk to people about my wife, nobody has ever heard of this disease. We need to raise funds and awareness for this disease and find a cure.
I am excited to be supporting the Myasthenia Gravis Foundation of America (MGFA) through the MG Walk. The MGFA is the only national volunteer health agency in the United States dedicated solely to the fight against myasthenia gravis.
MGFA is committed to finding a cure for myasthenia gravis and closely related disorders, improving treatment options, and providing information and support to people with myasthenia gravis through research, education, community programs, and advocacy.
Please register to walk with me OR make a pledge to help me reach my goal!
Together We Can Make A Difference!