Welcome to my team page for the 2018 MG Walk. For those of you that know me this may sound like a recording, but for those of you who don't know much about me and my MG journey you're about to learn some.
In early 2017 prior to my first fall I was beginning to have an eye droop with my right eye, little did I know what was going to follow. For spring break 2017 I went to Disney World with a friend the morning we flew home I was perfectly fine. About 7pm that night I had my first fall, it was one of the scariest things I think that I had ever encountered at that point. Of course I went into the hospital and had tests upon tests done to think it was Guillain-Barre Syndrome which made sense at the time. Had a round of IVIG and got sent on my way. Throughout the next 2 months I began to slur my speak, difficulty chewing, unable to dress myself, continuous falling, fatigue, and blurred/double vision. Of course I was told by a neurologist that I was absolutely insane and nothing was wrong with me. I played Dr. Google and took the information to my PCP. June 2017 I was diagnosed with MG, IVIG worked for a brief time then stopped, Prednisone caused me to gain 80lbs in 3 months, had an allergic reaction to Rituxinab which put me in the hospital to begin Plasma Exchange. a temporary port and 2 external ports later nothing was working. Earlier this year I was approved for the new treatment of Soliris which fingers crossed has been working. Somehow I managed to get a position working at Carney Elementary with one of the best teachers and a class full of fun children. I would say that was a blessing because it gave me a reason to get out of bed each morning. I am currently scheduled for my Thymectomy (removal of the thymus gland) on July the 13th. Fingers crossed and prayers sent that this helps. I have been blessed in many ways and I continue to push forward with the strength and guidance of the Lord. Being in the 5% of people who gets all symptoms and nothing really works for I have an AMAZING support team. Thank you all for visiting my page and reading some about me. Each donation helps a ton as there currently is NO CURE for MG.