Hi friends!! Thank you for visiting my MG Walk fundraising page!
I'm Carol Mayka, captain of team Joyful Noise for the Arizona MG Walk on Sunday, December 3, 2017 at Chaparral Park in Scottsdale, and I'd like to invite YOU to register to walk with me (registration is FREE!) and/or make a financial pledge to help make a difference for the future of myself and others affected by MG. I've set a fundraising goal of $1000 to help support the Myasthenia Gravis Foundation of America – the only national volunteer health agency in the United States dedicated solely to the fight against Myasthenia Gravis.
Myasthenia Gravis (MG) is a rare autoimmune disease in which antibodies mistakenly attack and destroy neuromuscular connections between nerve cells and muscles, causing weakness. Symptoms can include slurred speech, difficulty chewing and swallowing, chronic muscle fatigue including debilitating weakness in the arms and legs and neck, drooping eyelids, blurred or double vision, and even potentially life-threatening difficulty in breathing.
I was diagnosed with MG earlier this year. The muscle weakness caused by this incurable disease, as well as the side-effects of available treatments to control the symptoms, have already impacted my life dramatically. The toughest thing I've faced so far has been a change in my barbershop bass singing voice. I am grateful to be working with a highly skilled team to strengthen and preserve it. There are lots of other things I just can't do right now and my body reminds me about the enormous value of little things we take for granted. Every day brings new challenges.
I'm a fighter who is no stranger to autoimmune challenges. 20 years ago I was diagnosed with Transverse Myelitis (TM), another rare autoimmune disorder, which damaged my spinal cord and paralyzed my lower body on one side. I didn't tell friends or coworkers what was going on because I was afraid to look weak and didn't want sympathy. I worked constantly to improve my balance and coordination, all while keeping my "weakness" a closely held secret and never asking for help or support from anyone. Luckily I got better over the last two decades. But I did it alone.
This time I'm not alone. Nobody knows why I got MG. Of course I'm angry that it screwed up my plans. Yet there are clearly some great things to be learned here. Like the power of a positive attitude for example, or the freedom of disclosure without fear of being perceived as weak (ironic, huh?) and perhaps the greatest lesson of all... that of COMMUNITY. I know I have some pretty awesome friends out there that not only would want to help me make my way through this journey, but along with an awareness of this rare disease, would jump at the chance to also help others affected by MG. The MG Walk is a great opportunity to help and have some FUN doing it!
I created the aptly-named team Joyful Noise in the spirit of strength and confidence. YOU are invited to join my team. The walk is the morning of Sunday, December 3, at Chaparral Park in Scottsdale. Check-In begins at 9 am and the Walk Ceremony begins at 10 am. The walk is a mile around the lake.
Thank you for caring to share in this journey.
Together We Can Make A Difference!
Joyful Noise team page