Thank you for visiting my "MG Walk" personal fundraising page!
I am excited to be supporting the Myasthenia Gravis Foundation of America (MGFA) through the MG Walk. The MGFA is the only national volunteer health agency in the United States dedicated solely to the fight against myasthenia gravis.
In the fall of 1997, I began having difficulty climbing steps, getting on the school bus, getting out of bed, and frequent falls. Writing became difficult became and I experienced double vision and had droopy eyelids. The activities I loved, such as playing the piano, became too taxing. My 17th birthday was spent in an MRI trying to figure out what was going on with my body. I seemed hopeless, but my doctor believed me. February 4, 1998, I was diagnosed with myasthenia gravis after being sent to a specialist at UF Shands Hospital, in Gainesville, FL. The MGFA was the only organization that provided information to me and my parents, about these two strange words that would forever change my life: myasthenia gravis. Here I am, 19 years later, still fighting to raise awareness about the realities of life with MG, but also to lift the stigma of what MG is supposed to look like. I adopted the motto, "see me, not MG" as a way to help people understand that I am a person, not just a diagnosis. My nickname, "Boovicious" means sweet but tough, and that is how I fight to live with this illness! Won't you help my team, "See Me Not MG?" Anything you can donate, will go to help thousands of others just like me, living with this rare neuromuscular disorder! Research is needed to provide new treatments and information to patients, so we can all have a world without MG.
MGFA is committed to finding a cure for myasthenia gravis and closely related disorders, improving treatment options, and providing information and support to people with myasthenia gravis through research, education, community programs, and advocacy.
Please register to walk with me OR make a pledge to help me reach my goal!
Together We Can Make A Difference!