I started with symptoms in the end of 2013. Thought it was a cold that just wouldn't go away. I started to have issues swallowing and my speech was slurred so went to a specialist, he brushed me off, and I pushed on. I started to have weakness in my arms, but I could deal with it.
2014 Things kept getting worse, I was talking like a hearing imparted person, and swallowing was so bad I was living on protein bars and juice. The weakness in my arms got so bad I couldn't lift my 13lb cat. I thought I might have a pinched nerve so went to a chiropractor, I did have that but he recommended me to see a neurologist, he had a feeling of what was wrong.
So March of 2015 I found my neurologist, he said it's one of 2 things...let's do a blood test. Soooo April 5 ,2015 Dr called and said I have good news and OK news. Good news you don't have ALS, you have Myasthenia Gavis it's treatable but not cureable. He started me on meds and by the end May I had my first of many crisis.
So after many hospital stays, a thynectomy, and many bouts of plasmapheresis I have got things to a point I'm "stable". Still have to take meds and IVIG but I can deal with it.
Thank you for visiting my "MG Walk" personal fundraising page and reading part of my story!
I am excited to be supporting the Myasthenia Gravis Foundation of America (MGFA) through the MG Walk. The MGFA is the only national volunteer health agency in the United States dedicated solely to the fight against myasthenia gravis.
MGFA is committed to finding a cure for myasthenia gravis and closely related disorders, improving treatment options, and providing information and support to people with myasthenia gravis through research, education, community programs, and advocacy.
Please register to walk with me OR make a pledge to help me reach my goal!
Together We Can Make A Difference!