Two years ago I was diagnosed with an autoimmune disorder I had never heard of and had no clue how to pronounce. My MG symptoms began with double vision and inability to open my eye completely. After many visits to various specialists I was finally lucky enough to come across my wonderful Neurologist who recognized some of my symptoms and began testing for MG.
This year my symptoms have gone from a nuisance to a life altering problem. I have gone through a surgery to remove my thymus gland, had two MG crises where I stopped breathing and required emergency intervention and have spent a total of fifteen days hospitalized, four of which I was in the ICU.
Two weeks ago my husband found me laying on the floor unresponsive and struggling to breathe. By the time I arrived in the emergency room I was in a full blown MG crisis and unable to breathe on my own. I required emergency intervention for breathing as well as a ng tube placed since I could not swallow.
While there are a handful of treatment options there is no cure. Treatments can help reduce severity of symptoms but do not completely prevent them from flaring.
MGFA is committed to finding a cure for myasthenia gravis and closely related disorders, improving treatment options, and providing information and support to people with myasthenia gravis through research, education, community programs, and advocacy.
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