Thank you so much for visiting my fundraising page!
As you are probably already aware of, I have a rare neuromuscular autoimmune disease called Myasthenia Gravis (MG). I was diagnosed in 2011 after having nearly 10 years of worsening symptoms that evaded multiple neurologist as to their cause. I had just about given up hope on finding help until, as what I considered ‘one last try’, I met Dr Weiss. Unbeknownst to me, he was a specialist in MG. He had me diagnosed in 10 minutes of conversation. Further testing confirmed what he suspected. I can’t tell you enough how thankful and lucky I felt to have made that appointment with him. He was an answer to my prayers and saved my life.
MG can cause serious symptoms such as arm/leg weakness, trouble swallowing, speaking, breathing and disabling double vision. MG often prevents us from doing what we want and need to do. It invariably hurts our quality of life and sets a new 'normal' to everyday tasks. There are treatments for MG but not all patients respond well to current treatment options. Furthermore, the treatments we have, are not without potentially serious side effects.
I am fundraising for the Myasthenia Gravis Foundation Of America (MGFA). The MGFA is our ONLY national volunteer organization in the fight against MG. The MG Walk Campaign is the flagship national awareness and fundraising drive for the MGFA. Since it's launch, the MG Walk has raised $5 million to help fund research toward a cure, better treatments, much needed programs and services, education and awareness to the public and an increase in advocacy efforts.
My personal goal is $3500.00. I’m hoping you will find it your heart to help me reach that goal! Our Tampa Bay Walk is scheduled for March 10th at Rowlett Park in Tampa…yippee! If you have never been to one of the MGFA Walks or its been a while since you last went, I encourage you to come on out, I would LOVE to see you there! It is a great time for all of us, with our family and friends in tow, to come together in support of one another. People come from many surrounding counties and some will be meeting others with MG for the very first time. It is also a time that we can help raise awareness for this disease and show our support for the MGFA. I can tell you for a fact, that I and many others owe our life and emotional sanity to them. For me personally, I felt so alone when I was first diagnosed but I found the MGFA and it changed my life by providing information on the disease, treatments, and a much appreciated support group where I learned I wasn't alone and that proved to be an invaluable tool in my MG journey.
If you are interested in the MGFAs financial information click here: http://www.myasthenia.org/AboutMGFA/FinancialInformation.aspx
Thank you so much for ALL YOUR HELP!
Until there's a cure...There's hope. And for that we have each other!