Thank you for visiting my "MG Walk" personal fundraising page!
I am excited to be supporting the Myasthenia Gravis Foundation of America (MGFA) through the MG Walk on behalf of my son Jake. The MGFA is the only national volunteer health agency in the United States dedicated solely to the fight against myasthenia gravis.
Myasthenia gravis is a chronic neuromuscular autoimmune disease that causes weakness in the skeletal muscles, which are responsible for breathing and moving parts of the body, including the arms and legs. There is currently no cure.
Some individuals with MG have MG that only impacts their eye muscles.
This is called Ocular MG.
Most with ocular MG go on to develop generalized (body-wide) MG.
This can impact virtually any muscle in the body. It is common to have problems with vision, speech, chewing, swallowing, movement of the arms and legs, and breathing.
Jake's experience started in 2015 with drooping eyelids and double vision. When in crisis, he can lose the ability to see all together. He takes prescription medication every 3 hours every single day. His family, friends and school staff have to be constantly aware of signs of worsening symptoms that could lead to breathing trouble.
Throughout all the doctors appointments and new medications, Jake remains positive and upbeat. He is an artist who enjoys spending time with his friends and family. To know him is to truly love him. He never looks for sympathy or pity. Instead, he is usually the one offering help to others. This experience has made him stronger and he lives everyday with purpose and appreciation.
MGFA is committed to finding a cure for myasthenia gravis and closely related disorders, improving treatment options, and providing information and support to people with myasthenia gravis through research, education, community programs, and advocacy.
Please register to walk with me OR make a pledge to help me reach my goal!
Together We Can Make A Difference! Thank You!