Hi, I'm Harper and I have MG.
Thank you for visiting my "MG Walk" fundraising page!
When I was diagnosed at 1 year old, doctors told me I was one of the youngest cases of Myasthenia Gravis they had seen. Because, MG is a rare autoimmune disorder the community of my fellow MGers in Portland, and the greater Northwest, was a pretty small group, and there certainly weren't many toddlers.
My parents turned to the MGFA (Myathenisa Gravis Foundation of America) to learn about local resources for our family, as well as to discover ways we could build awareness and improve support for other MGers in our community. The MGFA is an incredible organization, committed to finding a cure for Myasthenia Gravis and closely related disorders. They work to improve treatment options, and they provide information and support to people with MG through research, education, community programs, and advocacy.
The MG Walk is the MGFA's national fundraiser and it is an awesome way to bring awareness to my little known disease! I hope that you can come out for the walk and show your support for all of us in the MG community. I will be walking with family & friends on Saturday September 30 at Summerlake Park @ 10am. Mom always brings fruit snacks and capri suns, and the MGFA provides coffee and bagels. The park is super pretty and there are playgrounds for us kids.
If you can join us--and I'd love it if you could--register to walk with me OR make a pledge to help me reach my goal. Big hugs to everyone!
Thank you for your continued support... Together We Can Make A Difference!