Harper Daley

Portland | Team Harper

Hi, I'm Harper and I have MG. 

Thank you for visiting my "MG Walk" fundraising page!

When I was diagnosed at 1 year old, doctors told me I was one of the youngest cases of Myasthenia Gravis they had seen.   Because, MG is a rare autoimmune disorder the community of my fellow MGers in Portland, and the greater Northwest, was a pretty small group, and there certainly weren't many toddlers.  

My parents turned to the MGFA (Myathenisa Gravis Foundation of America) to learn about local resources for our family, as well as to discover ways we could build awareness and improve support for other MGers in our community. The MGFA is an incredible organization, committed to finding a cure for Myasthenia Gravis and closely related disorders. They work to improve treatment options, and they provide information and support to people with MG through research, education, community programs, and advocacy.

The MG Walk is the MGFA's national fundraiser and it is an awesome way to bring awareness to my little known disease! I hope that you can come out for the walk and show your support for all of us in the MG community.  I will be walking with family & friends on Saturday September 30 at Summerlake Park @ 10am.  Mom always brings fruit snacks and capri suns, and the MGFA provides coffee and bagels. The park is super pretty and there are playgrounds for us kids. 

If you can join us--and I'd love it if you could--register to walk with me OR make a pledge to help me reach my goal.  Big hugs to everyone!

Thank you for your continued support... Together We Can Make A Difference!



Raised: $4,170
Goal: $2,000
100 percent raised

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Rank:  
#9  National 
#1  Local

Thank you donors
Darrell and Linda Webb : $3,000
Shannon Daley : $200
XO-Big Girl!
Sally Hemson : $100
Go Team Harper!
Jamie Severson & Sally : $100
Burning it up for Team Harper
Joe Daley : $100
Papa Joe loves you!
ACF West Inc Dick & Susan Schmidt : $100
Sydney Labadie : $50
Labadies love you!
Emily and Dick Iverson
Heather Korbulic : $50
Stacy Latham : $50
Elissa Kilshaw : $50
Marissa Wilson : $50
Meg Nottingham : $50
Looking forward to the walk Saturday. Go Team Harper
Paul & Collen Schierholtz : $40
Go Team Harper!
Allyse Paetsch
Jenna Bese-Vilante
Shelly Hansen
Brook Gore
We love you Daley Family!
Elizabeth Hull : $25
Ashley Rice : $25
Sarah Williams : $25
Team Harper
Shannon Daley - $1400 raised
Bernice Webb - $350 raised
Bethany Kelly - $75 raised
Colin Sailor - $0 raised
Colleen Schierholtz - $100 raised
Harper Daley - $4170 raised
Jason Gore - $0 raised
Jessica Sailor - $0 raised
Jessica Sailor - $100 raised
Kev Webb - $250 raised
Matt Daley - $100 raised
Meg Nottingham - $0 raised
olivia paulson - $0 raised
Paul Schierholtz - $50 raised
Phil Moran - $50 raised
Scott Nottingham - $0 raised
Vanessa Shay - $300 raised

Join this team