I have walked to raise money for other important causes in the past. MS, breast cancer to name a couple. But bringing awareness to this disease is even closer to my heart. My son, Jeffrey, was diagnosed in 2007 with Myasthenia Gravis. Myasthenia gravis is a chronic autoimmune neuromuscular disease characterized by varying degrees of weakness of the skeletal (voluntary) muscles of the body.
At the time of diagnosis, Jeff was working and raising his two sons. He did not have the time to have to deal with this diagnoses, he had much to do. But he had to deal with it, and this disease is not easy to deal with. He couldn't swallow, he couldn't talk, he lost a lot of weight. He had a thymectomy, he tried different diets and fasting, and many kinds of medications to try and stabilize his symptoms and try and live a normal life. I am so proud of him, he tried everything, never giving up.
Finally, working with his doctors and learning as much as he can about the disease, he has a regiment that works pretty good. A combination of drugs and regular IVIG therapy. It doesn't always go smoothly. The insurance may not get the treatment approved in time and then the change of schedule can bring the symptoms right back with a fury. Every day he has to take care to manage his well being.
I want a cure for Jeff. Funds raised by walkers all around the country will help find a cure for the many people that are suffering from M G.
Besides the money that we have raised that is shown through the MGFA, we have also raised money for the Canadian branch that does not show here.