Thank you for visiting my "MG Walk" personal fundraising page!
I was diagnosed with Myasthenia Gravis in December 2014 after dealing with increasing symptoms for a long period of time before that. MG is a neuromuscular autoimmune disease that prevents communication from the nerve to the muscle. It is a very unpredictable disease and one day I can be doing nearly normal activity and the next be bedridden because my muscles are too weak to function for daily tasks like showering, walking, cleaning, etc. Muscles of the eyes, limbs, swallowing, and those that affect breathing can become weakened and even paralyzed. The more a muscle is worked, the weaker it can become. Therefore, exercise or overuse of certain muscles can put someone with MG into a crisis that affects the ability to breathe and can even cause death. There is no cure for MG. There are treatments that can provide very temporary improvement and they are very expensive. My prayer and hope is that I will experience a remission. In the meantime, I get infusions every few weeks of plasma donors' healthy antibodies to provide me strength to continue working and being able to be with my family.
More research and education for insurance companies to cover the needed treatments is essential. Increased awareness among healthcare professionals is desperately needed so others can receive correct diagnoses and treatments. Your help is needed!.
On Saturday, September 30, I will be participating in my third Myasthenia Gravis Walk since being diagnosed. At an MG Walk, most of us can barely make a mile but the option of 1 or 3 miles are available. I walk not only for myself, but for my late mother who also had MG, my aunt in PA who has ocular MG, and the many friends I have met on this journey who fight this debilitating disease daily, and for those who succumbed to MG. By participating in this annual event, I am helping to bring awareness about this disease and support the Myasthenia Gravis Foundation of America (MGFA). The MGFA is the only national volunteer health agency in the United States dedicated solely to the fight against myasthenia gravis.
MGFA is committed to finding a cure for myasthenia gravis and closely related disorders, improving treatment options, and providing information and support to people with myasthenia gravis through research, education, community programs, and advocacy.
I invite you to register for the Utah MG Walk on September 30 OR make a pledge to help me reach my goal!
Together We Can Make A Difference!