Thank you for visiting my "MG Walk" personal fundraising page!
As most of you already know (and if you don't now you do!) I was diagnosed 4 years ago with a rare neuromuscular auto immune disease named Myasthenia Gravis. This disease affects every individual differently; leaving most to nickname people who suffer from Myasthenia Gravis as "snowflakes" because no two snowflakes are alike.
MG, for short, limits the muscle function in the body making everyday normal tasks sometimes impossible for myself and others affected by this rare condition. To make it short and sweet, my body attacks my own immune system, breaking down the chemical, acetylcholine, that serves as the connector from the nerve to the muscle. When this chemical is attacked and broken down it leaves me with loss of muscle function.
I was first diagnosed with Occular Myasthenia which means that only my eyes were affected by the muscle loss- my eyelids would become droopy and my vision would become blurry, double and what I described as being "stuck" . In late 2015 I began to notice a difference in my ability to use my arms and legs- the muscles were much more weak making things like climbing stairs at work or blow drying my hair seem somewhat impossible, let alone infuriating. Although I know how lucky I am that these are my "only" symptoms (as some experience muscle loss in their respiratory system which complicate breathing and swallowing), it is an invisible disease that I fight every second of every day. I know it's hard to believe as I may look and appear "normal" and healthy however I assure you the groceries I carry are always a second away from being dropped as are the flight of stairs I take 100x a day at work seem endless and unendurable. I can't begin to describe the never ending feeling of hopelessness and defeat when I go to complete an every day task that used to be so effortless and easy (like typing!!!) and realize that I now must take my time and pace myself as the labor has become exhausting. It's eye opening how many things I used to take for granted.
I'm doing this walk not only to raise awareness and to help fund new research to help cure this rare disease but also to meet others who suffer from MG. I believe that it is truly important to know that you're not alone fighting the unknown and that others too actually know what you're going thru. I hope after reading this you have gained a little insight on what I battle every day. Your support of me and this walk would be so greatly appreciated - whether it be walking with me and my team (which I would LOVE- the more the merrier!) or just making a donation (even the smallest amount can help), I want to thank you for just taking the time to read my message! Love you all!!!
I am excited to be supporting the Myasthenia Gravis Foundation of America (MGFA) through the MG Walk. The MGFA is the only national volunteer health agency in the United States dedicated solely to the fight against myasthenia gravis.
Please register to walk with me OR make a pledge to help me reach my goal! We MG Snowflakes need all the help that we can get to try and stop this ugly disease!! We won't quit fighting!!!
Together We Can Make A Difference!