Amber McKeon

Virtual | Team McKeon

Hi' ???? and welcome to my MG Walk page...ARE YOU READY TO LEARN ALL ABOUT MY JOURNEY WITH MG?! 

My MG story started 11 years ago, actually almost to the day ...when I was a brand new first time momma to our beautiful angel on earth! 

After my my checkup...I was cleared to start exercising  and that's what I did...well I tried! 

We quickly learned that something was 'off' with my legs and arms...and then my smile...and then my voice...and it was just downhill from took TWO and a HALF YEARS to get finally diagnosed, so on February 27, 2009, I was officially diagnosed with Mysthenia Gravis and my life has never been the same since that first day that we noticed something was 'off'!  Fast forward, three years and many pills, liquids, tests, injections, and infusions later...I was FINALLY given a {good enough} clean bill of health to start trying to expand our family by one more...and in May 2011, our beautiful baby boy was born to complete our amazing family...unfortunately, he was also born with Mysthenia Gravis but THANK the GOOD LORD it was neonatal Myasthenia Gravis...and so once his immune system kicked in, he improved and has grown into a healthy, strong and handsome little stud! ????

On this journey that I am and all of my 'budddies'...the docs have thrown everything at me seeing what will stick...treatments have worked temporarily but never last long enough for me to to enjoy the freedom! What have they thrown at me...prednisone {the devil in pill}, immuran, cellcept, IVig {liquid devil for me}, rituxan, and finally cyclophosphamide...for a total of 10 months of chemotherapy...all to end in the same disappointing FAILURE to give me the quality of life that I do desperately want! ??

This is who I am...I am MG...I am a WARRIOR and I will continue to fight...I may lose some daily battles but I WILL win the war! ??

Without my strong faith and the love and support of  my husband and children, I would have NEVER made it through these last 9 years of my life...if God only gives you as much as you can handle...then he must think I'm a badass! ????

This year will be our 8th year participating in the MG Walk and we could not be MORE excited to make this year TEAM MCKEON's biggest year make it the BEST comeback year EVER! 

So! It's time to dig out those walking sneakers and get to walking with TEAM MCKEON! ????

Family and friends, this is a GREAT CAUSE and  the MGFA has personally helped me throughout this journey, especially when I was first diagnosed and had no idea where to turn to for guidance and support...back before we knew how to even pronounce MYASTHENIA GRAVIS correctly! ????

Please register to walk with TEAM MCKEON OR make a pledge JUST $5 to help me reach my goal, because we are going to CRUSH our goal this year! I can feel it! 

Together we are Stronger! ?????? 

I am also so excited to be supporting the Myasthenia Gravis Foundation of America (MGFA) through the MG Walk. The MGFA is the only national volunteer health agency in the United States dedicated solely to the fight against myasthenia gravis.

MGFA is committed to finding a cure for myasthenia gravis and closely related disorders, improving treatment options, and providing information and support to people with myasthenia gravis through research, education, community programs, and advocacy.

Raised: $250
Goal: $1,000
30 percent raised


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#228  National 
#4  Local

Thank you donors
Allison Reed : $40
Hope you can reach your goal! Love ya!
Garrett & Renee Brown : $100
Jocelyn Fouladgar : $30
Danielle Hicks : $50
Joseph McKeon : $30
Team McKeon
Amber McKeon - $250 raised

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